Do you live with or care for someone living with multiple long-term health conditions?

Help researchers to support patients living with multiple long-term health conditions by sharing your experiences.

People with multiple long-term conditions are more likely to have poorer health, poorer quality of life and a higher risk of dying than those in the general population. However, decisions around health conditions which lead to policy recommendations usually focus on a single disease.  More people are now living with multiple long-term health conditions yet decisions regarding the management of each condition are usually considered individually.

REMIT is looking to develop a new approach to manage people with multiple, long-term health conditions with an aim to reduce treatment burden and ensure improved outcomes for patients and the NHS. The study will also look at the potential impact on more deprived communities.

What experience do I need to help?

 You will need to be :

• Living with, or caring for someone with two or more of the following diagnosed conditions:

Chronic pulmonary disease 

Psychoses 

Fluid and electrolyte disorders 

Weight loss 

Coagulopathy (Bleeding disorder) 

Rheumatoid arthritis: Includes rheumatoid arthritis and collagen vascular diseases 

Obesity 

Anaemia: Includes blood loss anaemia and deficiency anaemia 

Diabetes: Includes diabetes with complications and diabetes without complications 

Neurological disorders: Includes neurological disorders affecting movement, dementia, seizures, and epilepsy 

Liver disease: Includes moderate to severe liver disease 

Renal disease: Includes severe renal failure 

Cardiovascular disease: Includes congestive heart failure, heart rhythm disorders, valvular disease, coronary heart disease, stroke, and hyperlipidemia 

• Feel comfortable in sharing your experiences with other members of the public and wider research team

What will I be asked to do?

You will be asked to become part of the Patient and Public Involvement and Engagement group for the study, and advise on the design, outcomes, key issues, and best ways to share the findings.

How long will I be needed for?

The project will last for three years. Meetings will take place online every six months and last up to two hours. Before the meeting, you would be asked to read some paperwork, which should take around half an hour.

What are some of the benefits for me?

• Gain experience contributing to research and influencing study design and delivery.
• Be part of a project that could change policy and practice for patients living with multiple long term health conditions.

What support is offered?

• Swansea University will offer payment for time of £25.00 per hour (people can request less if they are in receipt of state benefits). 
• You will be supported by the Project Manager and PPIE Lead who will be your named contacts.  They will offer informal training and support for you to be part of this group.

​​​​​Have a look at our guidelines for more information about this.

If you are receiving any benefits, you can access confidential advice from the Benefits Advice Service for Involvement.  

To apply please complete the form below.