EDIRA™ Conference

EDIRA™ Conference brought to you by RareQoL a social enterprise based in north Wales.

In person: Friday 12 May 11.30 – 17:30. Cardiff and 19 May 2023.

Venue: Whitehall Suite Leonardo’s Hotel Cardiff, 1 Park Place, Cardiff, CF10 3DN

The RareQoL team will be launching their EDIRA inclusive research campaign at the conference. This event will include a conference Launch Party in the evening.

Online: Friday 19 May 2023, 11.30 – 17:30. This event is aimed at an international audience and will be hosted on the SWAPCARD platform.

The EDIRA Conference sponsors will be supporting four inclusive research seminars in September, December 2023  March and May 2024.

EDIRA Project aim                                                                                                                       

Let’s do inclusion: Diverse Communities and Communities of Practice                       

The aim of the EDIRA project is to co-create an inclusive research framework; to develop guidance about inclusive research from the perspective of underserved communities, to support the work of professionals from different Communities of Practice.  

Who should attend?                                                                                                                          

The Communities of Practice who would benefit from attending the EDIRA conference are:

• Diverse and Rare Disease Communities: advocates, carers, patient groups.
• Academic
• Health Care
• Pharmaceutical
• Research
• Social Care / Policy Development

The EDIRA conference will be hosted by Dr Sondra Butterworth, a Community Health Psychologist, CEO of RareQoL and founder of the EDIRA project, and Associate Professor Dr Andrew Mitchell, from the University of Chester, England.