Rare Diseases Research Network

The Rare Diseases Research Network, formed in February 2025, is an inclusive community of researchers, practitioners and advocates- bringing together those working in rare diseases and those whohave an interest in rare diseases to research, collaborate and work towards enhancing rare disease research in Wales. 

The Network would like to invite you to join them for a day of collaboration and knowledge sharing to improve health outcomes for the rare disease community.

Don’t miss the joint presentation from Health and Care Research Wales and the Life Sciences Hub Wales, where the Health and Care Research Wales Research Faculty Development Advisor, Dr Claire O’Neill, will walk attendees through the purpose, eligibility criteria and application journey for the Faculty personal awards.

This event is organised by the Rare Diseases Research Network. For any queries, please contact the team.