Help improve genetic cancer testing for patients in Wales

This is your opportunity to shape a major study aiming to transform cancer testing in Wales and beyond.

QuicDNA Max is a study that will be conducted in Health Boards across Wales and will be coordinated by the Centre for Trials Research. The research focuses on using a simple blood test to detect cancer DNA and its mutations that can help doctors identify genes linked to disease, plan a targeted treatment and better monitor the disease. Initially, the study will focus on multiple cancer types, including lung cancer, prostate, bowel and cancers where the primary site is unknown. 

What experience do I need to help?

Experience reviewing research projects would be advantageous. The Centre for Trials Research is looking for people who:

• Have personal or family experience of cancer
• Are familiar with the NHS in Wales
• Are familiar with genomic testing (helpful but not essential)
• Feel confident reading and commenting on information for patients

What will I be asked to do?

• Review and comment on patient-facing materials like information leaflets, consent forms, and questionnaires.
• Attend monthly Trial Management Group (TMG) meetings (one hour) via Microsoft Teams.
• Competent IT user for both documents and attending virtual meetings (Teams)
• Provide feedback that helps shape the design and delivery of the study based on real-world experiences.
• Influence what health outcomes matter most to people affected by cancer.
• Help identify barriers to participation and propose practical solutions.
• Help to ensure the research stays relevant, ethical and focused on what matters to patients and families.

How long will I be needed for?

Duration: Up to five years (entire research lifecycle).

Time per month:

Approximately one hour: TMG meeting (monthly at first, then quarterly)

Approximately one hour/week: reviewing materials (documents, patient info)

Occasional promotional or training workshops (optional)

What are some of the benefits for me?

• Make a difference: Your experience will help shape research that directly affects cancer diagnosis and treatment.
• Personal development: Gain valuable experience in health research and contribute to the design of patient materials and study processes.
• Flexible, remote involvement: All meetings are online, so you can participate from the comfort of your own home.
• Contribute to better care: Help improve cancer testing and treatment, making a real impact on the future of patient care.

 What support is offered?

•  A point of contact, available for any queries and who will provide support around meetings and document reviews.
• Cover reasonable travel expenses and additional carer or childcare costs,
• Offer payment for time of £25.00 per hour (people can request less if they are in receipt of state benefits). 

Have a look at our guidelines for more information about this. 

If you are receiving any benefits, you can access confidential advice from the Benefits Advice Service for Involvement.  

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