Help us develop a programme of heart failure research for Wales

We are inviting people with experience of heart failure services to help us develop a meaningful and relevant research programme in Wales. Your insights will help identify priorities and guide decisions that impact real lives. 

You’ll work alongside researchers and healthcare professionals, contribute through monthly online meetings and be fully supported throughout your involvement. This is your chance to make a difference in heart failure care and research.

What experience do I need to help?

You don’t need any previous research experience to help - just personal experience related to heart failure services. That could include:

• Living with heart failure yourself
• Supporting or caring for someone with heart failure
• Using heart failure services (such as clinics, rehab or hospital care)
• Having thoughts or concerns about how heart failure care could be improved

We're looking for a range of voices from across Wales. What matters most is your willingness to share your views, listen to others, and help shape research that reflects the needs and priorities of people affected by heart failure. Full support and guidance will be provided throughout.

What will I be asked to do?

As a public contributor, you’ll be asked to:

• Join monthly online meetings (no longer than 2 hours) to share your views and ideas
• Read and comment on documents in advance of meetings (we’ll keep these clear and manageable)
• Help identify priorities for heart failure research based on what matters most to people with lived experience
• Support the design and planning of future research studies
• Give feedback on how research is carried out and shared with the public

How long will I be needed for?

•  1 year, starting in July 2025.

Commitment:

• Monthly online meetings, each no longer than 2 hours.
• Occasional time before meetings to review documents (likely 1–2 hours per month, depending on the materials).

Estimated total monthly time:

• Around 2 to 4 hours per month, depending on how much pre-reading is required.

What are some of the benefits for me?

Benefits to you:

• Help shape heart failure research that reflects what matters to people with lived experience
• Contribute to improving future health services and support in Wales
• Learn more about research, heart failure care and health systems
• Develop skills in communication, reviewing documents and working with professionals
• Gain confidence in sharing your views and influencing decisions
• Be part of a supportive, inclusive team where your contribution is genuinely valued

 What support is offered?

• Cover reasonable carer or childcare expenses.
• Dedicated person to provide support,
• We will offer to pay public contributors £25 per hour for attending meetings or reviewing documents, and £5 per meeting towards home office costs of online meeting
• You will receive a public contributor handbook with easy to read information about the project and your contribution

If you are receiving any benefits, you can access confidential advice from the Benefits Advice Service for Involvement.  

Please complete the form below